Conference Schedule

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THURSDAY SCHEDULE

4:00-4:05pm   Donna Kirchoff, MD Opening Remarks and Welcome

4:05-4:35pm    Greg Plotnikoff, MD, MTS Mitigating Iatrogenic Psychological Toxicity: Three Secrets for

                                                   Optimal Patient Outcomes

 4:35-5:00pm    Stephanie Grach, MD Changing the Medical Paradigm Around Complex Chronic Illness

 5:00-5:10pm     Q&A   

 5:10-6:10pm     Larry Afrin, MD Mast Cell Activation Syndrome: Current Concepts

 6:10-6:40pm     Dinner break

 6:40-8:10pm      Larry Afrin, MD Mast Cell Activation Disease: Diagnosis

 8:10-8:55 pm     Larry Afrin, MD Mast Cell Activation Disease: Treatment

8:55-9:15pm Q and A

FRIDAY SCHEDULE

7:00-8:00am     Breakfast         

 8:00-8:05am    Anne Hill, ND Introduction for the day

 8:05-8:50am    Alena Guggenheim, ND Diagnostic and Pain Management Essentials for

Hypermobile Connective Tissue Disorders

 8:50-9:20am     Dave Saperstein, MD Small Fiber Neuropathy

 9:20-9:40am      Suzanne Rosenberg RPh Compounding Medications for MCAS: Tried and True Formulas

 9:40-9:55am      Q&A

 9:55-10:10am     Break   

 10:10-10:50am    Sanjeev Jain, MD Second Line Therapies for Severe MCAS

 10:50-11:15am    Claudia Miller, MD, MS TILT/MCAS: Using the QEESI to Identify Initiators and Triggers—

From Implants and Mold to Combustion Products and Pesticides

 11:15-12:00am    David Kaufman, MD The Hallmarks of Aging and the Management of Chronic Complex Illness

 12:00-12:20pm   Q&A

 12:30-1:30pm     Lunch (Shoreline Room), (1:00-1:30) Richard Boles, MD (Gorge room)  Treatable Pathways

Common In Functional Disorders as Elucidated by Genetic Testing

 1:30-2:00pm   Jill Schofield, MD What You Need to Know About Antiphospholipid Antibodies in Patients with

Postural Orthostatic Tachycardia Syndrome (POTS) and MCAS

 2:00-2:30pm   Eva Nagy, MD Breast Implant Illness and MCAS: Why Cutting Corners is NOT a Good Idea

 2:30-3:00pm   Alexis Cutchins, MD It's Not Just POTS: The Role of Connective Tissue Disorders, Venous Disease,

and Mast Cells in Postural Orthostatic Tachycardia Syndrome

 3:00-3:30pm   Lenny Weinstock, MD, FACG (pre-recorded talk) SIBO (Small Intestinal Bacterial Overgrowth)

and IMO (Intestinal Methanogenic Overgrowth) in MCAS

 3:25-3:45pm    Q&A   

 3:45-4:00pm    Break

 4:00-5:00pm    Andrew Maxwell, MD The Complex Path to Intracranial Hypertension and Cerebrospinal Fluid

Leak in those with Hypermobility and Dysautonomia; The Theory of Spiky-

Leaky Syndrome

 5:00-5:25pm    Edward Hepworth, MD Craniocervical Dysfunction in MCAS and Postural Orthostatic Tachycardia

Syndrome

 5:25-5:50pm    Edward Hepworth, MD Cerebral Spinal Fluid Fistula in MCAS and Postural Orthostatic

Tachycardia Syndrome

 5:50-6:10pm   Q&A   

 6:10-7:10pm    Dinner 

 7:15-8:15pm    Larry Afrin, MD Proposal for MasterMinds Transformation into a Formal Professional Society

SATURDAY SCHEDULE

7:00-8:00am   Breakfast         

8:00-8:05am    Laurie Menk Otto, ND, MPH Introduction for the day

8:05-8:45am    Paolo Bolognese, MD (prerecorded talk) Neurosurgical Implications in Ehlers-Danlos Syndrome

8:45-9:05am    David Saperstein, MD Seeking Additional Means to Diagnose and Manage Craniocervical

Instability: Potential Role of the Multi-cervical Unit (MCU)

9:05-9:35am    Danny Shouhed, MD Evaluation and Treatment of Median Arcuate Ligament Syndrome and

Superior Mesenteric Artery Syndrome

9:35-9:55am   Q&A   

9:55-10:10am   Break   

10:10-10:30am   Jandra Mueller, PT Mast Cell-Mediated Genitopelvic Pain

10:30-10:50am  Alyssa Yee, MD Mast Cell-Mediated Genitopelvic Pain - Vestibulodynia

10:50-11:15am   Meredith McDermott, MD Clinical Approach to the Diagnosis and Treatment of Pelvic Venous

Disease

11:15-11:35am    Q&A   

11:35-12:30am/pm    Lunch (Shoreline Room) (12-12:30 in the Trillium room) Craig Shimasaki, PhD (non-CME)

(Trillium room) Understanding the Connection Between Infections, the Immune System and

the Brain: Molecular Mimicry and Its Role in Autoimmune Encephalopathies Secondary to

Infections

12:30-12:55pm   David Kaufman, MD Vector Borne Infection:  Determining Risk and the Search for Laboratory

Confirmation

12:55-1:35pm     Tania Dempsey, MD, ABIHM Advancements in the Treatment of Vector-Borne Infections: 

Current Strategies and Future Directions

1:35-2:15pm       Bela Chheda, MD Epstein–Barr Virus Reactivation: Myalgic Encephalomyelitis / Chronic Fatigue

Syndrome (ME/CFS) and the Role of Antivirals

2:15-2:35pm     Stuart Malcolm, MD Vascular Endothelitis in Long Covid

2:35-2:55pm    Q&A   

2:55-3:15pm     Break   

3:15-3:40pm     Larry Afrin, MD, Tania Dempsey, MD, Diane Nugent, MD, Jacob Tabs Development of a

Comprehensive MCAS Assessment Tool

3:40-4:05pm    Diane Nugent, MD "You are a Marvel” (YAAM) Using Biometrics and Patient Reported Data to

Impact Care and Outcomes

4:05-4:15pm     Q&A   

4:15-4:40pm     Claudia Miller, MD (pre-recorded talk) TILT, Autism and ADHD: Using the QEESI to Predict, Prevent,

and Improve Symptoms of Autism and ADHD

4:40-5:00pm    Tina D'Amato, DO Gender Affirming Care in the Setting of MCAS and Associated Disorders

5:00-5:25pm     Donna Kirchoff, MD MCAS in Developmental and Behavioral Pediatrics

5:25-5:45pm     Tania Dempsey, MD, ABIHM Exploring the Impact of Endocrine and Hormone Disruption on

Mast Cell Activation Syndrome: From Puberty to Menopause

5:45-6:00pm     Q&A   

6:00-7:00pm     Dinner 

7:00-8:00pm     Diane Nugent, MD & Larry Afrin, MD Establishing MCAS Centers of Excellence


SUNDAY SCHEDULE

7-7:40am         Breakfast 

7:40-7:45 Alena Guggenheim, ND Opening Remarks        

7:45-8:05am    Heather Purdin, MS, PT, CMPT Physical Therapy Modifications for HSD/EDS and Related

Comorbidities

8:05-8:25am    Kellie Barnes, PT Cord, Dura, and Vascular Tissue: A Possible Role for Physical Medicine

Management

8:25-8:50am    Theresa Dowell, FNP, PT Innovative Approaches: Alternative Treatments for Patients with

Complex Illnesses

8:50-9:20am    Luke Liu, MD Stellate Ganglion Block for Interventional Neuroimmunology

9:20-9:40am    Jill Crista, ND Nicotine Patch Use for MCAS, Postural Orthostatic Tachycardia Syndrome and Long

Covid

9:40-10am        Q&A   

10-10:15am        Break   

10:15-10:45am   Jennifer Gaudini, MD, CEDS-C, FAED MCAS and Eating Disorders: Prevention and Treatment

10:45-11:10am    Amy Schleper, MS, RDN, CDCES A Holistic Approach to Nutrition in MCAS - Beyond a Low

Histamine Diet

11:10-11:35am    Greg Plotnikoff, MD  Nutritional/Metabolic Considerations in MCAS Evaluation and Treatment

11:35-1:30 am    Box Lunch available for pick up

11:45-12:15am/pm  Jen Curtin, MD Scaling And Streamlining Complex Illness Care Using Technology

12:15-12:40pm   Laurie Menk Otto, ND, MPH The Impact of Climate Change on Allergic and Inflammation Driven

Diseases

12:40-1:00pm    Q&A   

1:00-1:15pm   Kellie Barnes, MOMT, MPT, CSCI Closing Remarks